My Knight in Shining Armor

My brave husband shaved my head tonight.  Even though he didn't want to, he picked up the electric razor and did what I asked.  As my daughter said, I'm leaving my DNA all over the place and I had enough.   He was gentle and kind.  Since it was just the two of us, no pictures were done to document the event.  Perhaps I will be brave enough to share my bare head, perhaps I won't.  We didn't do anything creative, like shave designs or a mohawk ... nothing fun or exciting.  I'm wearing a...

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Learning How to Tie Scarves

Shoppi...

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Expressing Myself

This weekend went REALLY fast! Today, Christie, mom & I went to lunch, movie and shopping.  We laughed at "One for the Money" and bought more hats and scarfs.  I hated trying them on, as I was afraid of leaving bits of my hair in them (sorry folks).  Christie brought over a razor for me...just not sure when I will be doing it, but know that it will be in the next few days.  My head feels weird.  It's like I hit the the back of my head on pavement. Or like I've been wearing a helmet all day and just took...

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Nutrients

I have been following Lil Blue Boo. Her blog is very creative and informative. Please read this post on Nutrients and incorporate it into your life.http://www.lilblueboo.com/2012/01/a-lecture-from-dr-mom.ht...

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It's Begun

A wonderful warm shower this morning ... and a fist full of hai...

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Lookin' a little Junkie

The GorgeThis morning, I had my first INR Blood Test which measured 1.8.  Doc said I'm right on target (needs to be between 2-3).  She said I don't have to take the remainder of the shots (Framine) as the blood thinners are doing what it needs to do.  There are 2 shots left, which she wants me to save in case my numbers get low again.  I look like a "junkie" on my belly as the needle marks are leaving bruises.She wants another test next Friday and then every 2 weeks.  She asked me if I was up to collecting...

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You are Beautiful

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Oncotype DX Revisited

Blue Ridge ParkwayDuring my follow-up appointment with Doc Esther, I mentioned that the surgeon had ordered the Oncotype DX test. (see post "The Day After - Jan 13") I had agreed to the test in a phone call with the agency and asked Doc if the results would make a difference in my treatments.  She said that I tested positive for all 3 areas that matter and the test would not provide anything new.  Doc recommended cancelling the order.  Okay, so it cost $4,100 ... I have no problems cancelling if the...

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No Pressure Here

I do believe the blood thinner is working! My arm does not hurt as bad and the pressure seems to be easing.  Matt gave me the shot in my belly this morning and did a fabulous job.  4 more to go!More good news .... I have my taste buds back! Yeah!  Hubby made steak for dinner tonight and I could actually taste it.He drove me to/from work today as I wasn't sure how shaky I was gonna be.  Sis' BackyardLife is good ~ Isn't it?I feel free as a bir...

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Elf-like Earrings

A few years ago, I picked up these earrings at an art expo.  Aren't they way cool?  I didn't wear them much because of my long hair, but now....Matt took this picture Jan 21. Just showing off my short cut.  A very different look for m...

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Somebody Just Shoot Me ~ Would ya?

My hospital room was a private room and I was certainly grateful for that.  It's been awhile since I've been overnight in the hospital.  All the nurses were great, no problem there.  I tried to fall asleep by 11:00, but as tired as I was, struggled.  My arm was pounding and it was difficult getting comfortable. About 2:30, I asked Nurse Ashley for the sleeping pill she had on order.  I think it worked by 4:00.  I got up between 6-7am (I think) and got myself ready to go home.Matt arrived about 8:30am to...

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First Follow-up Post Chemo & Hospital Stay

Very long day....but now that I am finally settled in my hospital bed (10:25pm), I'll try to recount the events of today.My appointment with Doc Esther was at 1pm today.  My blood count (napir) was great and I got the opportunity to ask her a lot of questions.First on the list was my port and the fact that I had deep blue veins showing through my skin.  It was still tender and sore.  Once she examined me, she decided to have an ultrasound done to check for blood clots.  Her assistant got it set up for 4:00 today and...

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Be an Active Participant

I've been reading the Breast Cancer: 50 Essential Things You Can Do book that my sister bought me.  I think it is even a book for people without cancer as it is geared towards "us" being an active participant in our own healing and wellness.  That is something we can all do everyday in all areas of body, mind and spirit.  "The most important person on your health and healing team is you! You are the one who is ill. It is you who must work to get well again. You are the character of central importance. You are in charge."Sometimes...

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Why I am Where I am

Today, I made it through a full shift of work! Oh boy, was I tired, but I did it.  I'm so grateful to have the type of job I do have.  I work in the world of HR/Benefits, mainly leave of absences.  Expert in FMLA.  With this, comes dealing with medical issues and benefits ... but more importantly, people.  In hospice situations, I get involved with their families as well.  There are very special memories I have kissing the cheek of someone who is taking their last breathe.  I whisper, "save a dance for me in heaven".  The special bond with those families is something I will always...

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pH Balance

As I read through other blogs trying to find resources, encouragement, etc. (see blog list) I came across pH BalanceWhat do you think? (scroll down to the char...

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To Cathy

Cathy has been in a lot of conversations lately.  Especially since getting my hair cut.  It brings me back to the poem I wrote a few years ago.  Until We Meet AgainI love youI miss y...

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A Chance to Refocus

Blue Ridge ParkwayThank God for New Days ~Your prayers for me are always appreciated.  A friend of mine called me tonight and as usual, prays with me before hanging up.  It brings a new meaning to "I'll say a prayer for you".  To hear the words straight to God and to feel warmth inside my soul brings peace.  The timing was perfect. It was also a chance to pray for her, especially for her upcoming missions trip to Haiti.  A chance to "refocus".  Matt drove me to work this morning. I had a mini meltdown before...

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Back to work ... Well, Almost

I cried myself to sleep last night.  The pain in my feet and hands returned full force and my nausea kicked up.  I settled into a fitful sleep after taking a pain pill.   The alarm went off and I found myself shuffling instead of walking.  Actually, I was walking like I had M.S.  Very unstable.  As I washed my short hair, reality kicked me in the gut again.  That keeps happening.  I got fully ready for work though. Nose bleeding, hands swollen, bones hurting and hubby said he didn't want me driving.  I really wasn't sure how I would anyway.  I certainly didn't want to...

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Just Chop it Off ~

Today is Day 4 after chemo.  Better than Day 3 .... but that "better" didn't happen until early evening.  The pain in my joints have lessened. The queasy feeling is still there.  Now I know the days I'll probably miss work.  Thursday and Monday.  Today, was like a mac truck hit me.Oh well, life keeps going on.My sister hooked me up with a friend who cuts hair.  Debbie was very gracious to come over to my home to "get 'er done".  It shocked me looking in the mirror ... I saw Cathy.  Just a short...

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Day 3

I woke up at midnight with the worse pain in my joints. All day, it felt as if someone smashed my bones with a hammer.  My knees, ankles, feet and hands.  I've had 3 pain pills throughout the day, with no relief.  Headache, queasy.  I hope that this is the worst of it and the last day of it.Tomorrow is a holiday and, thankfully, no work.  I'm not sure how all this is going to effect my work schedule. I got my paycheck from being off work and it was low.  I just need to figure out how to toughen up and not miss much work.Sis brought over a wonderful meal of roast and potatoes.  I'm so grateful!I'm...

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Day 2

I've been told that side effects generally start on day 2 after chemo.  I'm tired today, had a few queasy moments, body aches, lots of bathroom visits .... but, I'm hanging in there.  Mom made homemade chicken noodle soup, which hit the spot.  I can tell that I'm loosing some tastebuds though.Christie stopped over tonight to visit.  Glad she did because I haven't seen her in several days since she's been sick.  She looked like a doctor with her blue mask on.  Lots of Purell too.  My laptop wouldn't...

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The Day After - January 13

I'm not superstitious (don't tell grandpa). So, today is just another day.  Woke up to a whole lot of snow.  First heavy one since winter started.  Slept on/off last night, kinda tired today.  Had a bowl of cheerios (good) and a cup of coffee (not so good).  Note to self, no coffee after chemo.  Took all required meds this morning...fighting off nausea.Called Radiology today about my stitches.  Suppose to get them removed 7-10 days, today is Day 8.  She told me to stay home because of the weather and that Monday would be just fine.  Happen to have Monday off work, so that is fantastic. ...

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First Chemo Treatment - January 12, 2012

Before we left, I had to rub the "numbing cream" on my port (1-1/2 hr prior to treatment).  Once on, wrap it with saran wrap.  Don't try this on your own, lol.  Many hands are needed for this.  It did help, as I didn't feel a thing ~Well, we arrived at 8:30 to check in.  I got a card to swipe like I got in radiation office. Our first meeting was with Denise, our social worker.  Very nice young lady who described what to expect and to offer her assistance as the "navigator".... to help with billing disputes...

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My Goodie Bag

Well, I think I have packed everything but the kitchen sink .... no, not really, but an all day treatment seems daunting so I have assembled items to keep me busy.  Laptop...check! Magazines...check! Audio Books...check! Blanket with pockets...check! Deck of cards...check!  And, the loads of literature given to me since day one of learning I have canzer.  I haven't had enough quiet moments to sit down and focus on them.  (need to remember to take a highlighter)I finished 3 full days of work, which just wasn't enough...

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Echo

This morning, I left work to go get the echo ultrasound.  It was strange watching my heart beat on the monitor .... similar to watching a baby in the womb.  The valve looked like a tiny hammer keeping  rhythm to my breathing.  The lady tech said she needed 80 slices (photos) and as I watched the screen I let my mind wonder.  This test will determine if my heart can withstand my cocktail.  She said that the doc will get the results in a few days .... well, in a few days I will be having my first chemo treatment.  They better have it in time *geeze*The most asked question I get from women is...

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Reasons to Smile

The outpouring of love given to me and my husband has been overwhelming.  Offers of taking me to appointments, sitting with me during chemo treatments, making dinners, flowers ... I am grateful, thankful, encouraged, hopeful, emotional, you get the drift. Tonight, my sister provided dinner of homemade cheesy potatoes and honey baked ham. DELICIOUS!Plus, my nephew brought over my first and very own laptop! I can't even believe it! Thanks to my momma and Tom, I will have something to do during the long hours of chemo.  Happy,...

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My Cocktail

My 3 chemo meds are:Taxotere - the dreaded hair loss and neuropathy.  Low white and red blood cell count which increases risk for infection.Herceptin - chills, fever during first infusion, body pain, weakness, nausea. An echo is required to make sure my heart can withstand it.  Sheduled for Jan 10.Carboplatin - More of the above, plus taste changes.Well, you can see for yourself.  This is the stuff that is going to kill any cancer cells growing in my body.  Progressive Muscle RelaxationNo More NauseaFight Back against side effectsSerious Side of Side EffectsPreparation is K...

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First Day Back To Work

I think a person who is pushing the envelope to get back to "normalcy" should go back to work on a Friday....highly recommended.  I managed to put in 5 hours, but the achiness of my arm and not sleeping well did me in.  As you can see from the bruise, it feels like someone gave me a knuckle sandwich a hundred fold. It was my first time driving since Dec 20.  I'm so glad the sun was out and no ice/snow to contend with.  I'm cut on the right side and cut on the left.  I need to find some humor in this...somehow.I called nurse Rose to find out if there were signs I should be looking for regarding...

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Power Injectable Port

The intensity of this procedure was totally unexpected.  You see yesterday, when I met with Doc Esther, I mentioned that I would like to get back to work by Friday.  She agreed and said that returning to a routine would be great.  What she didn’t tell me was how terrible inserting the port was going to be.  I must be a wimp or something.  Day of InsertionOUCH!This was an hour long process in a surgery-like room.  Gowns, masks, the whole thing.  But instead of lovely sleep, it was a local anesthesia. ...

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Orientation Day

Today, we got a tour of the treatment spaces (not rooms, no privacy here). Recliner chairs sectioned off by waist high walls.  Nurse Julie gave the power point presentation and went through the basics of chemotherapy.  And then she discussed the dreaded side effects.  There were 2 other patients present with family.  Matt & Christie were by my side JNurse Julie gave me write ups on 2 drugs that where in my cocktail.  She informed me that I “may” need a $16,000 shot the day after chemo if my blood count was low.  I kept looking at the hand-out that she provided because it didn’t match what...

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Chemo Starts Next Week

Chemo starts Thursday, January 12 @ 8:30am.  The HER2 test was positive. As with this whole canzer-thingy, everything is happening very fast.  I do like Dr. Esther.  She’s a hugger too.  Prep first:Jan 5 – Chemo “class” a 1 hour orientation ·         Provide an overview of chemotherapy·         Review side effects and how to manage them at home·         Introduce you to our multidisciplinary teamThe...

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Threshold of a New Year

I haven't really made a new year's resolution in a long time.  Unless I really know I'm going to meet the goal or task in hand, why speak the words?  Now I know that a healthy lifestyle change will be in order .... eating healthier and exercising more.  I quite smoking 9 years ago cold turkey.  I was determined and my kids were my motivators.  Since the lifestyle change is a must and I know I will meet the goal, you would think that this could easily be my new year's resolution.  But, I think I will challenge...

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Post Surgery Follow-up

My Rose BushDoc Partin said I'm healing just fine.  She hasn't released me to work just yet until she consults with the chemo doc.  My appointment is tomorrow morning with Doc Esther.The HER2 status did come in as positive, which means chemo treatment.  How much and what kind is something Doc Esther will plan out with us.  That's all to report for now on the canSURVIV...

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What to expect at my radiation treatments – Follow up from Dec 30 blog

Nurse Robin provided a tour of the facility and guided us through what to expect once treatment begins.  I got the usual height, weight and blood pressure junk out of the way and then she took my picture.  I’m always the one behind the lens, so this took me by surprise.  Was this a “before” and “after” to gauge how radiation treatment is going to change my appearance?  Robin said it was to help identify patients …. Okay, I can live with that.Another new and cool idea is a swipe card.  Instead of registering at...

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Going for Comfort

After the surgery, my doc instructed me to wear a bra 24/7 until otherwise instructed. My follow-up appointment is tomorrow, so I’ll know more then.  Anyway, I have to avoid wire …. Well, actually, all women should avoid under wire.  She was real pleased to hear that I had just received new Genie Bras from my sis.  Wearing a bra 24/7 is not the most pleasant thing, but I have to admit that the comfort of the bra makes it better. The Genie BraA guide to keeping your breasts healthy now and in the years to come. This article...

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Information Overload

So, I’ve discovered I’ve had a lot of “ectomies” in my life… Tonsillectomy, Hysterectomy, Oophorectomy, Lumpectomy. And I’ve also noted that with as much data that is out there about each one of us, there is still a lot of systems that are not connected to one another. Even if it is in the same building.  There are SO many forms that I’ve had to fill out since my “journey” began. So, why can’t they share all this data?And with each medical person that comes in the room, I’m asked my date of birth.  Next time, I’m asking if...

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