Saturday, September 28, 2013

Planning Our First Event

Christie is a creative woman who has many, many wonderful ideas.  When she feels a project coming on, the wheels start spinning, ideas start flying and thoughts are written down on anything handy.

See that  book of notes?  If you remember, you are lucky....(joke).....what I was going to say: If you remember, there is such a thing as chemo brain.  It is hard to hold onto a thought.  We just have to write down everything! One page has a sentence written on it, but it is upside down on the page.  It was funny to watch her when she noticed it, "huh, wonder how that happened."

See that phone in hand?  It has the latest technology, apps, internet connection and all.  Constantly ready to keep the ideas rolling ... at all 24 hours of the day.

The current project is our very first event ~ A celebration of our win against breast cancer.  I can guarantee that with Christie's ability as a public speaker and teacher, this will be informative with a flair of wit, laughter and thought-provoking revelations.

So, where do I come in?

Well, I'm the "sounding-board", the ying to her yang, and the organizer of these ideas.   Not the planner, (not going to happen), the organizer.  My hundred years of office work will come in handy as we begin to lift off the non-profit

Oh, how I love Microsoft OneNote!!! (check it out if you haven't seen it).  That is my job this weekend. Creating our notebook, sync it on sis's computer and teach her how to navigate.

She is going to LOVE it! 

After this event, we will welcome feedback, collect more ideas, tweak it here and there and then .... take it on the road.

In between all of that, we are looking for our Board of Directors.

The divine appointments over the past few weeks have multiplied.  We are both meeting women who want to get involved by using their God-given talents.  As they tell us their stories of their own journey or of a loved one, an instant connection is made.  And, of course, a hug is freely given ~

Read More

Saturday, September 21, 2013

Tamoxifen - 1 week

One o'clock in the morning - after waking up ump-teen times, I decided to stay up for a bit.  Took 2 more pain pills and logged on.  I've had some inquiries about the effects of the Tamoxifen.  Can't say it is any better than Arimidex ... yet, it's only been a week. 

The pain is intense and I just wish I could describe it in a way to make myself understood.  I'm trying not to let this show at work and when I come home in the evening, I collapse.

My bones feel like they have been smashed by a sledge-hammer.  The shredded pieces like glass in my hands, arms, knees, legs, feet, ankles.  Today, my left elbow feels like I hit it against something hard.  I'm still bruising very easily. I'm hunched over like I'm 110 years old.  It is worse in the morning, and now seems to carry throughout the day.  I'm starting to have menstrual pains (I don't have a uterus and no cycles for 11 years).  What's that about?  My surgery sites (original surgery, plus nodes under my right arm, and reconstruction on my left side) all produce stabbing pain.  Sometimes the pain hits unexpectedly that I "yelp" out loud.  That can be embarrassing in public.

I tenderly hold my hands, softly rubbing to help ease the stiffness.  My neck and back ache so much.

So, this is the medicine to keep cancer away.  It sucks.

I've completed year 1 of 5 ~ can I endure 4 more?

I'm falling apart

Read More

Saturday, September 14, 2013

Arimidex vs. Tamoxifen

I have been taking Arimidex since August 2012. As the months go by, my pains are more extreme. My husband is the only one I really "show" just how bad.  After all, I'm in remission. I should be "all better now". That is what most folks think. They don't understand that poison streamed through my body killing cancer cells AND my good cells.  It takes time to repair, it takes time to get your strength back.

I don't mean to sound so whiny

I am very grateful that I have made it this far through "my journey".  I do try to have a smile on my face, stay out of "my bubble" and focus on others (thank God for the type of job I have),  and I get up every day to go to work.  I have to.  The mornings are the hardest .... that is when the pain is the worst.

So, Sept 12 I had a visit with my favorite oncologist to discuss my meds.

Quality of Live VS Recurrence 

Taking the estrogen blocker will give me a 40% chance of keeping cancer away .... at least this type of cancer.  I'm HER2 protein positive and estrogen receptor positive.  Just a little aggressive and mean-spirited.

Doc changed my meds to Tamoxifen, stating that I should start to feel  better in about a month and the bone pain will not be a side effect.  She said that the worry would be blood clots, uterus cancer (don't have one of those, so I should be good on that count).   I came home and looked it up on WebMD to read the reviews from other patients.  Looks like the same kind of complaints as Arimidex patients.

They don't call it "practicing medicine" for nothing!

I've given my life to God and I will give Him this too.  My church family gave me a prayer cloth anointed with oil and their prayers.  It is precious to me.

I'll be sure to keep you posted .... still living in the moment, each day at a time.

What Rock do you stand on?

Read More
Powered by Blogger.

© In This Together, Breast Cancer Support, AllRightsReserved.

Designed by ScreenWritersArena